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Petition to: call for Surrey PCT to change their policy on reducing gluten-free prescribing which is essential for people with coeliac disease.

This petition is now closed, as its deadline has passed.

We the undersigned petition Surrey County Council to call for Surrey PCT to change their policy on reducing gluten-free prescribing which is essential for people with coeliac disease. More details

Petition update 2 from the council, 05 October 2011

The Health Scrutiny Committee considered this petition at its meeting on Thursday 22 September 2011 and agreed the following response:

"In response to several letters of correspondence to the former Chairman, Cllr David Munro, the Health Scrutiny Committee agreed that it would scrutinise the decision made by the South East Coast PCT Alliance to limit the number of gluten free products available on prescription to one type of gluten free long life bread and one type of flour.

At the meeting of the Committee held Thursday 26 May 2011 the Committee heard evidence from NHS Surrey, a local Clinical Commissioning Group GP lead and the Chief Executive of Coeliac UK.

Following vigorous debate the Committee agreed that in light of the need to reduce costs generally across the NHS and due to greater choice and accessibility to Gluten Free products it was no longer necessary or affordable to provide a full range of gluten free products through a system of prescribing. However the Committee agreed with the view of Coeliac UK that there should be greater flexibility in the type not quantity of Gluten free products available on prescription.

As a result the Committee wrote to the South East Coast PCT Alliance asking them to continue to enter into discussions on exploring this matter further with a view to coming to a solution which was of mutual benefit to all.

Subsequently, as not all of the South East Coast PCTs have implemented this decision the Committee’s request was referred on to NHS Surrey for a formal response.

In response NHS Surrey thanked the Health Scrutiny Committee for consideration of this matter and confirmed that as part of the implementation of the changes to Gluten free prescribing, a review would take place in consultation with Coeliac UK to include patient feedback.

It is anticipated that that the outcome of this review will be known sometime in Autumn 2011. NHS Surrey will consider the outcome of the review including the views of patients, and any resulting recommendations to amending the current system of prescribing will be discussed by the relevant decision making body within NHS Surrey.

Whilst the Surrey Health Scrutiny Committee stands by its view that is no longer necessary to provide the full range of gluten free products previously available on prescription, Members remain concerned about the level of flexibility in the system particularly for those patients who are elderly or have additional needs.

As a result this Committee requests that the outcome of the six-month review being conducted by NHS Surrey is made available to the Committee for consideration at the earliest opportunity and reserve the right to recall this matter formally to the Committee should the Membership deem it necessary.

The Committee also requests that NHS Surrey and the wider South East Coast Alliance continues to engage with Coeliac UK and similar user led organisations in order to ensure that the needs of the patient are being listened to and taken in to account."

Petition update 1 from the council, 15 September 2011

A response to this petition will be given at the meeting of the Health Overview and Scrutiny Committee on Thursday 22 September 2011 (10am at County Hall, Kingston upon Thames).

More details from petition creator

Coeliac disease is an autoimmune disease. There is no cure and the only available treatment is a strict, lifelong gluten-free diet. A wide range of gluten-free products is available on prescription and easy access to these is vital to promote compliance with the diet to avoid potential health risks amongst people with the condition. Surrey PCT has recently placed unnecessary restrictions on these products which is detrimental to the care of people with coeliac disease. We call for this position to be reversed and returned to the previous policy in accordance with the national guidelines on gluten-free prescribing. We ask for the Health Scrutiny Committee to assist with this.

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  • Samantha gold
  • Clare Radcox
  • Jimm Leaf
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  • Dom Hull
  • Laurence Byrne
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  • Updated: 12 Dec 2017

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